Out of PICU!!!

Great news...lil Will has been moved from the PICU to the floor on yesterday, another awesome anniversary present. Our son has given us two great gifts in two days. Can you imagine what he will give us one day when he actually has a job?!?! He is now on the renal floor, the nurses and docs on this floor specialize in kidneys and dialysis. So, since lil Will still has the Peritoneal Dialysis, that is why he was moved to this floor.

The PICU docs and staff hated to see him go, they really love our lil guy. At the same time, they were extremely happy that he has made so much progress that he does not require intensive care. Praise Him!!

Now, although I am so excited about him leaving PICU, there are certain comforts I became accustomed to. For instance, if a chest xray is ordered, in less than 5 minutes, the xray is done, on the floor it may take a hour. The nurses move a bit slower than the PICU nurses, different requirements,logically I know this, but as a mom, I want it done NOW! Pray for me. =)

Since he is now in the floor, he is in a crib, not a warmer! Yea! I can hold him all day now, well, not all day, but certainly as much as I want to hold him. He loves it! He usually goes right to sleep almost instantaneously! On the floor, they encourage us to stay with him at night. So, we will be staying here the majority of the nights. I don't think we will be getting much sleep since lil Will is still a bit confused on his days and nights. We are certainly going to work on this before he gets discharged!

He does continue to urinate. His BUN is at 12 and his creatanine is at 1.8 . Normal levels for creatanine are 0.1-0.8 so we have a bit to go but it is certainly much better than it was two weeks ago. Progress. Progress. Progress.

He is now having speech, physical, occupational and massage therapy. The speech therapist is working with him on his sucking, swallowing and nippling functions. He is enjoying the pacifier, he likes to suck it. She tried a bottle but he didn't like it too much. We will continue to work with him, it will take some time. His physical therapist works with him on his range of motion and also focusing his eyes on objects both in front of him and moving side to side. He is doing good with this therapy. He enjoys the leg excercises alot. His occupational therapist works with him on feel and touch. She places rattles and other objects on his stomach and moves his hands to touch them. She also helps him with his grasp, as you have seen on previous pictures, he's got that down! And finally, his massage therapist, YES, he gets a massage! It is just to make him comfortable.

Prayer focus for this week:
1. Lower Creatanine level to normal and increased urination to normal levels.
2. PAH (Pulmonary Arterial Hypertension) resolution.
3. Reduce Oxgyen on Nasal Cannula to 0 liters, currently at 1.5 liters. He was on 10 liters as of 1/31/09.
4 No infections and excellent lab results.
5. VSD surgery ( this will repair the hole, lil Will has between his lower heart chambers) No date yet for surgery but it will be in the near future.

Thank you for your continued prayers, love and support. We know God will see us through but it helps so much knowing we have each of you standing beside us during this journey. God bless each of you!