Finally, I get to hold my baby!!!

Lil Will was extubated successfully today! He is so handsome! What a treat to actually see his cute lips and chubby cheeks! I was present when the respiratory tech and physician extubated him, what anxious moments, what thoughts ran through my mind, I actually felt like I might need them to give me some oxygen before I hyperventilated! It was over before I knew it and my lil angel cried, although raspy and hoarse, a cry I have been waiting to hear for 35 days, 4 hours and 18 minutes. It was the best, I can't really describe the emotions I felt at that very moment. Of course, I cried, and the medical team in our room shed a few tears too. Praise God!

They placed a nasal cpap on Lil Will. It is vasal machine that provides oxygen for him, they are small prongs that are placed in his nostrils. The blowing noise of the oxygen is kind of loud, so it is quite alarming to him. I'm sure he was wondering what is going on? What happened to that tube? What is this noise? He was a bit agitated. He cried and cried. The nurse gave me a pacifier to help try and soothe him. Most Down Syndrome kids have issues nippling and/or sucking. Not, my sweetie pie, he latched on to the pacifier and sucked it! Boy, another flood of emotions came over me!

I finally was able to hold him around 7:30 PM! This was another long anticipated moment I have been waiting for too. It was the best feeling to have that little guy in my arms. He loved it too, as he relaxed and went to sleep! Of course, I never want to put him down because I have had to wait so long to hold my baby. I knew I had to, at least until I go back to the hospital tomorrow! The day is very near where I will be able to sit and hold him for hours...its called DISCHARGE!

His labs continue to be awesome. His BUN is finally in the normal range, it was 15 this morning and his creatinine level is 1.8, getting closer to normal! He is continuing to produce more and more urine. Still are praying for more urine. Overall, lil Will has made tremendous improvements since his admittal to Children's. God has performed some miraculous things in lil Will's short life. He does all things well!!!

Again, many blessing to each of you for your continued prayers and love. We love and appreciate each of you.