Thursday, January 15, 2009

Faith....


Well, its been a few days since we last sent an update on our little munchkin William. His daddy went back to work on Monday so he misses seeing him all day, his daddy comes by to see him everyday after work! This brightens lil Will's day!

Overall, Will is doing much, much better. All praises to God! He is continuing to breath at least 35 to 45 beats per minute above the ventilator. They hope to wean him off the ventilator and then just leave the ventilator on auto mode, meaning if he misses a breath the machine will automatically take over. They also are trying to wean him off the Nitric Oxide, he is only receiving .5L but everytime they turn it off, his O2 sats drop from the 95's to 100's to 83 - 88. So, they have to turn it back on. They have weaned his fentanyl drip (pain management) so he is opening his eyes, wiggling his toes and hands and will even grip your finger when you put in in his hand. He definitely recognizes our voices. PT/OT have been by to see him twice. They say he has good range of motion and actually is pushing back at them with his feet. He coughs and today even looked like he wanted to cry. He has the hiccups at least 2 or 3 times a day. He is 22 inches now, and his weight can't really be determined accurately b/c he is quite edematous. (lotta fluid) It is so amazing to watch him get better day by day. God is so amazing.

The nursing staff has been great! Since Will is more stable, we are able to do more with him. I was able to help mix some formula with "my nutrients" and put it in the syringe which feeds to him through a NG tube. He is now on full feeds, yea! They have shown me how to suction him when he blows spit bubbles, pretty neat! I can lotion his body and give him massages. It is really nice to be able to touch and love on him.

I told William that we needed to be more specific in our prayer request for Lil Will. We continue to pray for his total recovery and ultimate release from the hospital as a healthy and happy baby. However, there are some immediate prayer request for his needs now that will help us get to his discharge alot sooner.

So, this week's prayer focus is going to be the following:
1. Kidney & Liver functions to return to normal.
2. Continue to be infection free and normal lab results every time labs are sent!
3. Continued fluid reduction to normal weight.
4. 100% wean off Nitric Oxide
5. Extubation - removal of breathing tube = WE CAN HOLD HIM!!!
6. Care Team members and physicians are given wisdom and knowledge to care for our baby.

We are faith believers and know that God is a healer and in the business of making miracles. If we go to him with specific prayer request, He will answer prayers. We are standing in agreement with all who are apart of this email that where 2 or 3 of us are gathered, our Father is in the midst of us. He will hear our prayers and deliver the prayer needs of His children. We are thankful to have such a wonderful church family and great friends.

1 comment:

  1. we will keep the prayers coming!!! love to all of you.

    ReplyDelete