To God be the glory!

Praise God, Lil Will had a successful surgery. The surgeons are always surprised at how well he does considering his PAH(pulmonary arterial hypertension) issues. Of course, we are not, because we know God's got it! His ICU attending, Dr. Darnell had warned us what she expected to see from him after surgery and that was come back on a little higher oxygen support and maybe have more PAH crisis (oxygen saturations dropping). He did on both. He is also on some fentanyl (pain) and versed (sedation)drips as the next 5 days are critical for the healing of the trach. They want to keep him still and quiet with minimal stimulation. After day 5, we can hold him again and begin to learn how to care for his trach to include suctioning, hand bagging with oxygen, if needed. All these things so we can continue to prepare to bring him home with us! Thank you for your prayers for his successful surgery. Today, we are claiming in FAITH, his complete healing of the trach site as God continues to heal his lungs, kidneys and his heart. I am reminded of a song the women's choir at church have sang on many occasions, "I Never lost my praise." Praise God I can kiss those lips ANYTIME I want too without a breathing tube and tape being in the way!!I thank you Father!!!

Lil Will before the trach placement...

Today is a big day, Lil Will is going to surgery to have a trach placed. His surgery is today at 2PM. He is resting comfortably right now. The idea of the trach was first brought up to us 3 weeks ago. At that time we were not sure about it. Of course, our ultimate goal was to have him off the ventilator and breathing on his own. Which he can do, its just that sometimes he has PAH crisis which require intervention. To receive this intervention, he has to be re-intubated. In order to make his airway more stable, a trach is best. God was able to clearly show us this is the way to go last week. Last week Lil Will was extubated for 40 hours, he did well but at midnight, he had a PAH crisis where he dropped his oxygen saturations to the 40's. Thus he had to be re-intubated. He remained intubated for 3 days and they extubated again because he was breathing well on his own. Again, he remained extu bated for another 40 hours. During this time, William and I had both been talking to the Lord about the same thing (does Lil Will really need a trach?) Well, the Lord anwered us in no uncertain terms.During the past two weeks, we have been faced with major decisions related to Lil Will. The doctors have all not given up but have resigned themselves to say he will die due to his Pulmonary Hypertension. William and I have made the decision to fight until God tells us otherwise. He is sovereign and His will shall be done in Lil Will's life. He is in control and only He knows what the future holds. We are walking with along this path with the Lord and I must say it has been a wonderful spiritual experience.We are continuing to live day by day and enjoy every moment with our son. We are planning to bring him home, the trach is the first step in that plan.Prayer focus for today is a succesful surgery. Steady hands of the surgeon and watchful eyes of the anesthesiologist. We will let you know how surgery goes. We love each of you