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It has been several days since I last sent out an update on our lil angel. It has been one busy week. Today especially. I had a MAJOR meltdown! It all began when I called to check on lil Will this morning. His Cardiologist answered the phone. She was telling me how great lil Will looks and that he was still on for his heart surgery on Friday. Wait a minute, halt, pump the brakes! Last I was told by the Cardiac Nurse Practitioners was that his surgery was scheduled for tomorrow. Dr. Clapp said let me check, I will call you back. Meanwhile, I called my parents and Will, pretty irate, all of my senses just escaped me, I lost it. Of course, my wonderful parents and husband were able to calm me down and remind me that EVERYTHING happens in God's time. Of course, I know this, BUT for a brief moment, well actually, it was for a nano second, the devil was able to creep into my mind and attempt to play tricks...NOT! The devil is not welcome in our lives, I did tell him this as I crushed his head, his body and his tail as I praised our Father for His faithfulness! Hallelujah to the King!!!!

So, to sum up how we got to this point, yesterday, his Peritoneal Dialysis site began leaking again. His nurse changed the dressing and looked at the site and all looked well. Today, it showed evidence that it leaked again, so his PD was stopped by the kidney docs. It was stopped to minimize the risk of infection. We certainly do NOT need any infections. So, this means there will not be heart surgery tomorrow as originally planned. As mentioned before the PD's primary function is to act as lil Will's kidneys, keeping his sodium and potassium levels regulated. If the PD is not working, the surgery cannot take place as there would be no way to remove the fluid from lil Will. We were told this afternoon that lil Will would need to have a catheter placed in his clavicle area to begin CVVH dialysis, this is basically removing blood and filtering it in a machine and then sending it back to lil Will. (This is very similar to adult or older kid dialysis). This procedure was planned for tonight but the Chief of Cardiology, Dr. Forbus returns tomorrow and has advised the other docs to not do anything until he is able to review Lil Will's case. We are on hold, yet again.

William and I are spending the night here tonight so we can be here when rounds happen tomorrow morning. We will keep you posted on what the next step is once we have spoken with his physician team.

I do want to share with you something that my mom sent me today. As usual God sends the right word when you need it.

The scripture reference is Psalms 37:7 Surrender yourself to the Lord, and wait patiently for him.
Subject: Surrender: Let Go and Let God Work (by Rick Warren)

Surrendering your life means:
Following God's lead without knowing where he's sending you;
Waiting for God's timing without knowing when it will come;
Expecting a miracle without knowing how God will provide;
Trusting God's purpose without understanding the circumstances.

You know you’re surrendered to God when you rely on God to work things out instead of trying to manipulate others, force your agenda, and control the situation. You let go and let God work.You don’t have to always be in charge. Instead of trying harder, you trust more. You also know you're surrendered when you don't react to criticism and rush to defend yourself. The supreme example of self-surrender is Jesus. The night before his crucifixion Jesus surrendered himself to God's plan. He prayed, "Father, everything is possible for you. Please take this cup of suffering away from me. Yet I want your will, not mine" (Mark 14:36 NLT). Jesus didn't pray, God, if you're able to take away this pain, please do so." He began by affirming that God can do anything! He prayed, "God, if it is in your best interest to remove this suffering, please do so. But if it fulfills your purpose, that's what I want, too." Genuine surrender says, "Father, if this problem, pain, sickness, or circumstance is needed to fulfill your purpose and glory in my life or in another's life, please don't take it away!"


This level of maturity doesn't come easy. In Jesus’ case, he agonized so much over God’s plan that he sweat drops of blood. Surrender is hard work. In our case, it requires intense warfare against our self-centered nature.


Isn't this awesome?!?! What a word. Let go and Let God work. Surrender.

Prayer focus for this week is WARFARE prayer. Warfare praying is casting down strongholds. Strongholds such as fear, addictions, depression, sickness etc.
1. Smash all strongholds formed against Lil Will's body (kidney functions, infections, VSD, everything!) His body is the Lord's temple and He will reign supreme in his life and heal him.
2. Smash all plans made by Satan for lil Will's life and our lives.

Heavenly Father, I pray that You would strengthen us. Show us the ways Satan is hindering and tempting and lying and distorting the truth in our lives. Enable each of us to be the kind of person that would please You. Enable each of us to be aggressive in prayer and faith. Enable each of us to give You Your rightful place in our lives. Amen.

We love you all! God Bless!