Hi all,We are on the seventh floor at Childrens Medical Center in Dallas, finally out of ICU, we believe for the last time. God has given us a lot of insight into Will's diagnosed condition. Which I will not go into detail at this time. What I can say is that his diagnosed PAH is not as severe as they first expected. This has been the major concerned for quite some time. His heart is fine and he still produces urine so his kidney's have not totally failed and we get some pretty good pee pee diapers occassionally. Trust me, he has no problem in the poop area, PEEYOU!!! Today has been a busy day for him. He had speech therapy come in and work with him on sucking and eating. He did very well with eating from a dry spoon. Tomorrow he will be able to taste some baby food for the first time. His physical therapist came in and gave him his daily work out. He had him stand on his legs for a little while, he is still not holding his head up, but this is expected since he has been laying on his back for the majority of the past five months. He had a hearing screen today, they will bring in another machine to diagnosis his hearing, but Sequita and I know he hears just fine. If he hears some one behind him he turns his head to see who it is then he cuts his eyes back the other direction as if to say, "Oh, it's you". He has had some wonderful visitors the last couple of weeks. He says thank you to Melanie and Steve Davis for stopping by on Saturday. He really enjoyed his time with Glenda and Melissa Thursday before last. His cousin Jayden stopped in for the first time and laid hands on him and kissed him. He is always excited to see his Uncle Dennis, Aunt Tammy, Grand Daddy and Memaw. They were all here on Saturday. Nothing like family being together. WIll decided to sleep through most of the visit with the family. Sequita and I took CPR training on Saturday and we will be finish with his trach training by the end of this week. Then we will move on to his dialysis training. So we are looking at three to four weeks and he will be out of Childrens Medical Center of Dallas. On June 28th we plan to have a six month birthday party in his room. Maybe let him dip his feet in the cake or something. Just a small update on what is going on with the little one. Sequita is working on his blog, so that should be up and running soon. We will send the web address as soon as it is finish. I have attached some pictures so you can see how far the Lord has brought Lil Will.Be blessed
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