Thursday, April 23, 2009

NOT!

After sending the last update. The cardiologist who did Will's heart cath came and spoke with us. She presented Will's case during their weekly conference and they said, Will's heart will be fine and they did not recommend a lung biopsy due to the risk (50% mortality rate) for his diagnosed condition. I spoke with the ICU doctors this morning and my main question was, who suggested a biopsy in the first place? The answer given to me was a tap dance but I suspect it was the attending doctor for ICU. Either way it doesn't matter. The procedure was called off and Sequita and I are at peace and know we heard from the Lord about it. Now on to better news. Lil' Will is still resting, last night his nurse weighed him and he is a whopping 14 pounds. To us this is a miracle because of the diagnosed condition of his lungs and heart, the doctors said that he should be burning off all the calories he takes in, instead he has been gaining weight like a normal newborn. He has doubled his weight since birth. During rounds this morning, the renal doctors decided to take him off manual PD and put him back on the cycler for dialysis. This is being done in preparation for home. Since Will's heart cath went so well, he will begin getting the proper medications to help with the PAH and he will probably have to come home with oxygen. They have started to decrease his sedation medicines and pain medicines. They are also decreasing the nitric and his oxygen to a level where they can place him on oxygen support that we can take home. Overall, they are preparing our little one to come home. Sequita and I will have to go through some training for the cycler and for giving him oxygen if/when he needs it, but his road to recovery is moving forward. We are so grateful to the Lord for our family and friends. We are grateful for Will's complete and full recovery. We have come this far by faith. Leaning on the Lord. Trusting in His holy word. He's never failed us yet. I can't express enough how grateful we are to Him. He is the promise keeper. He is our Father. He is the great I AM. He is who He says He is.
We thank you all for your prayers and support.

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